Pope Francis embraces those with Huntington's Disease to end devastating stigma

Pope Francis caresses a sick woman during an audience with Huntington's disease sufferers and their families, in the Paul VI Hall, at the Vatican on Thursday, May 18, 2017. (AP Photo/Andrew Medichini)Pope Francis caresses a sick woman during an audience with Huntington's disease sufferers and their families, in the Paul VI Hall, at the Vatican on Thursday, May 18, 2017. (AP Photo/Andrew Medichini)

Pope Francis embraced weeping mothers, fathers and children with Huntington's Disease on Thursday as he sought to remove the stigma of an incurable genetic disorder that causes such devastating physical and psychiatric effects that its sufferers are often shunned and abandoned.

One by one, Francis blessed and greeted each of the family members and their caregivers who traveled from around the world for the audience, which organizers said represented the first time a world leader had recognized the plight of those who suffer from Huntington's.

Advertisement

"May none of you ever feel you are alone," Francis told them. "May none of you feel you are a burden. May no one feel the need to run away."

"You are precious in the eyes of God. You are precious in the eyes of the church."

Many of the families came from South America, where Huntington's is 1,000 times more prevalent than in the rest of the world. It is particularly prevalent in Venezuela, where the affected gene was first identified 25 years ago.

The disease causes cells in parts of the brain to die, resulting over time in involuntary movements, personality and mood changes and slurred speech. Symptoms usually develop between ages 30 and 50. Many suffer from psychiatric problems, including depression and anxiety.

Often the social stigma and superstition associated with Huntington's forces families to keep their relatives hidden—isolation that then can be compounded by poverty and discrimination. In some places, suffers are thought to be possessed by the devil.

Organizers said the audience marked the start of a global awareness campaign, "Hidden No More," which aims to also encourage scientific research into the disease, which has no treatment or cure.

 

Copyright 2017 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

Comments are automatically closed two weeks after an article's initial publication. See our comments policy for more.

Advertisement

Don't miss the best from America

Sign up for our Newsletter to get the Jesuit perspective on news, faith and culture.

The latest from america

The Holy Spirit might be the forgotten person of the Holy Trinity.
James Martin, S.J.May 21, 2018
Pope Francis walks past cardinals as he leaves a consistory in St. Peter's Basilica at the Vatican June 28, 2017. (CNS photo/Paul Haring)
Pope Francis is trying to ensure that those who elect his successor are humble men committed to “a church of the poor and for the poor.”
Gerard O’ConnellMay 21, 2018
James Martin, S.J. discusses this groundbreaking exhibition with Andrew Bolton, Curator in Charge of The Costume Institute and C. Griffith Mann, Michel David-Weill Curator in Charge of the Department of Medieval Art and The Cloisters, The Metropolitan Museum of Art. 
America StaffMay 21, 2018
Archbishop Matteo Zuppi (Photo/Community of Sant'Egidio website)
Archbishop Matteo Zuppi of Bologna calls Father James Martin’s book ‘Building a Bridge’ ‘useful for encouraging dialogue, as well as reciprocal knowledge and understanding.’
Matteo ZuppiMay 21, 2018